Sunday, November 22, 2009
How it's going
Well, I am on amantadine, which at least temporarily gives me some decreasing in tremors but if I take enough to have it be REALLY effective I don't go to sleep no matter what. Taking it twice instead of 3 x daily makes it tolerable without keeping me awake. However, Eddie reports that I talk, whimper, jerk, flail, grab, move my feet between 3 and 5 am every night. I know I am tired every day,
Tuesday, October 13, 2009
It's Mid-October
It's amazing how little has changed. We're not quite out of boxes as work on the house is winding down. Hope to soon be done and have it all put away. Less is positively more! It is my goal to have little or nothing for someone else to have to deal with if I can't do it myself some day. I still putter in antiques and dishes from the Art Deco period, produce a few cards, and just try to keep up here at home.
To say I am sleep disturbed is to put it mildly. Since starting Sinimet I have gradually increased sleep problems as the dose has increased. So I started backing the dose down and have to see the neurologist again this week. I wake up about every one to two hours all night. That's WITH a sleeping pill. I wonder if it would be the same without one, and am thinking about experimenting on that.
Next day I am gorked all day, sort of disorganized and can accomplish about 1/4 what I would normally do. This is frustrating. Good days are after a good night's sleep, and I feel better then, but still don't accomplish much. It's hard to have an effective routine.
To say I am sleep disturbed is to put it mildly. Since starting Sinimet I have gradually increased sleep problems as the dose has increased. So I started backing the dose down and have to see the neurologist again this week. I wake up about every one to two hours all night. That's WITH a sleeping pill. I wonder if it would be the same without one, and am thinking about experimenting on that.
Next day I am gorked all day, sort of disorganized and can accomplish about 1/4 what I would normally do. This is frustrating. Good days are after a good night's sleep, and I feel better then, but still don't accomplish much. It's hard to have an effective routine.
Friday, March 27, 2009
Long time no wirte
It has been a long year. Gradually got less tolerant of meds and shakier, so am off everything except an MAO inhibitor. Totally could not sleep. They did a sleep study that showed I just don't get into deeper sleep and stay there.
But I have quit work, applied for SSI and we'll see what happens. Meanwhile started a card business creating unique and lovely cards from vintage materials. It's going slow but going. I hate the book work for business upkeep.
Lots of changes this year. A flood in my house when I left the water running in the bath room sink while doing laundry. The house is semi-finished but more re-do on bathrooms and kitchen and laundry room. Feel like I've lived 6 months in boxes.
Everywhere in my house are reminders of our daughter, Deborah, who died 10 years ago in a PWC accident. A photo here or there just shifted with the rest of the contents after living in the same place 20 years.
I need to nap, was up half the night despite sleeping pills.
But I have quit work, applied for SSI and we'll see what happens. Meanwhile started a card business creating unique and lovely cards from vintage materials. It's going slow but going. I hate the book work for business upkeep.
Lots of changes this year. A flood in my house when I left the water running in the bath room sink while doing laundry. The house is semi-finished but more re-do on bathrooms and kitchen and laundry room. Feel like I've lived 6 months in boxes.
Everywhere in my house are reminders of our daughter, Deborah, who died 10 years ago in a PWC accident. A photo here or there just shifted with the rest of the contents after living in the same place 20 years.
I need to nap, was up half the night despite sleeping pills.
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